The following list was compiled by (and found on) the Boomer Esiason Foundation website. It is the most accurate resource list I have seen online, and as such, I wanted to share it with all of you...
GENERAL RESOURCES Cystic Fibrosis Foundation Cystic-L Cystic Fibrosis 101 Cystic Fibrosis Podcast NACFC Highlights Pseudomonas Genome Project Cystic Fibrosis Resource Centre (UK) MEDLINEplus Health Information: Cystic Fibrosis NY Online Access to Health: Cystic Fibrosis MyCysticFibrosis.com Cystic Fibrosis Drugs Reach For The Stars Foundation Allergy Be Gone Website
INFECTION CONTROL Infection Control at the UNC Adult CF Center (.doc)
CYSTIC FIBROSIS FORUMS Child-Teen-Adult Message Boards www.cysticfibrosis.com CF TESTING Aetna InteliHealth’s New Cystic Fibrosis Genetic Testing Guide CF ADULTS The Breathing Room CLINICAL MANAGEMENT National Institute of Diabetes and Digestive and Kidney Diseases: Cystic Fibrosis Research Directions CLINICAL TRIALS ClinicalTrials.Gov: Cystic Fibrosis Cystic Fibrosis Foundation: Clinincal Trials Air CF: Aztreonam Lysinate for Inhalation Research in Cystic Fibrosis www.air-cf.com
EDUCATION, SUPPORT AND ADVOCACY Cystic Fibrosis Research, Inc. (CFRI) CysticFibrosis.com International Association of Cystic Fibrosis Adults (IACFA) International Cystic Fibrosis Support Group National Cystic Fibrosis Awareness Committee (NCFAC) GENETICS Cystic Fibrosis Mutation Database GLOSSARIES Allergy-Immunology Glossary Compilation of Pulmonary Definitions Glossary of Respiratory Disorder Terms Glossary of Pulmonary/Respiratory System Respiratory Physiology Dictionary Transplant Glossary Lung Transplant Program Univeristy of South California University of Toronto Airway Glossary HEALTH INSURANCE Cystic Fibrosis Foundation Health Insurance Resource New Jersey State Organization of Cystic Fibrosis TRANSPLANTATION Transplant Infectious Disease (Table of Contents- Free) Abstracts (Pay) Transplantation (Table of Contents- Free) Abstracts (Pay) American College of Chest Physicians (ACCP): A Guide to Lung Transplantion Cheshire Medical Center: Lung Transplantation MEDLINEplus Health Information: Lung Transplantation Second Wind Lung Transplant Association Massachusetts General Hospital: Lung Transplantation Program Lungs for Life We've Been There: Lung Transplant NUTRITION MANAGEMENT Second Wind Lung Transplant Association: Pulmonary Disease and Eating EXERCISE AND FITNESS American Lung Association (ALA): Exercise and Keep Active ANTIBIOTICS MEDLINEplus Health Information: Antibiotics American Academy of Family Physicians (AAFP): Antibiotics: When They Can and Can't Help GENE THERAPY Human Genome Project Information Vanderbilt University Medical Canter: Gene Therapy on Horizon for Lung Disease Patients TRAVEL AND PULMONARY DISABILITIES Breathin' Easy: A Guide for Travelers with Pulmonary Disabilities SINUSITIS MEDLINEplus Health Information: Sinusitis National Institute of Allergy and Infectious Disease: Sinusitis National Jewish Medical Research Center: Sinusitis
SOCIAL SECURITY DISABILITY INSURANCE Beth Sufian on Social Security Disability Insurance
